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Our team cares for a large number of children who have complex gastrointestinal and nutritional problems. These include children with inflammatory bowel disease, intestinal failure, malabsorption, severe constipation, growth failure and those needing long-term parental and enteral feeding. This clinical workload has shaped our team structure and the development of the service. We offer the following clinical services:
We offer a regional clinical service for children with intestinal failure who are unable to meet their nutritional demands by the enteral route and who are dependant upon intravenous nutrition. The delivery of parenteral nutrition at home is an immense undertaking for both the families and the hospital team. This requires a considerable degree of nursing support – provided by Clare Burnett, Sue Stevens and Georgie Gregg – both in hospital and at home.
We care for over 100 children with inflammatory bowel disease. Many are adolescents struggling with coming to terms with having a chronic disease and developing their self-identity. They need special handling and more time to express their feelings. In order to meet their needs and to effect a smooth transition from the paediatric to the adult gastroenterology service we have developed a dedicated transitional clinic for adolescents and Sue Stevens has responsibility for coordinating this activity – one of only a few of its kind in the UK. |
